Being sick is hard. There are many times when I look at my life, at all the joys I’ve had to forgo and the thankless work I put in to simply make it through the day, and I wish I could change it all. I wish I could have energy, that I could eat whatever foods I want and socialize without crashing. The list of wishes and grief feels endless in those weeks when I’ve been slogging through a flare … Continue reading “5 Reasons Why I Love My Sick Friends”
We Are Not One Dimensional
One of the best perks of working with other chronic patients is the authenticity of conversations that come up around the products we create. Nothing makes me feel so seen and valued like hearing my lived experience from someone else’s mouth! This struck me recently at a brainstorming session about Mighty Well’s newest product, the Self Care Case. The patients in the (virtual) room were sharing what we were excited to use it for. Most were medical supplies like EpiPens, … Continue reading “We Are Not One Dimensional”